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This unfortunately is the reality for so many of us with EDS and it's been my life the last two months. Pain takes so much of my energy as well that I have nothing left to even text or write updates, but I didn't want to miss out completely on sharing for EDS Awareness Month. I've just witnessed how it can make a difference in someone's life for me to speak up and hope to write about that soon along with giving everyone some updates. I apologize to all my friends & family who've reached out without a response yet, I promise I haven't forgotten you and it means the world when I'm experiencing the above. #myEDSchallenge #myHSDchallenge
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