Health Update 7/1/2019

It feels like I'm always waiting to update people until we have definite answers because this whole process is just a lot of waiting, mixed with more doctors, new appointments, or different tests. I realized today no matter what it is, it is still an update and part of the journey figuring it out. So again I am still waiting, but I guess I can fill you in on what has happened lately and what's next and at least document it for myself for later. You can read the previous update here.

• Got report from MRI scans the nuerologist had done and they weren't as pristine as she told me. I actually have shallow disc protrusion with an associated annular fissure on the lumbar spine. It said I also have tiny facet joint spurs at the lower level, but now my PT believes the radiologist actually misdiagnosed those for huge bone growths that are fused to my pelvis and spine at L4 to give me no mobility. 
• Waiting for more MRIs to be done including the pelvis after what the pain specialist ^^ (above) here found when he was about to attempt a nerve block. Hopefully I hear about getting those scheduled this week.
• I was able to take the genetic test for Ehlers Danlos, including vascular that we were worried about, and it came back negative! It still means I have the hypermobility type, but there isn't a genetic code for it and we wanted to make sure I didn't have more than one type.
• The Dallas pain specialist tried something that didn't give relief, but she did refer me to a urologist, which may be the biggest piece to my puzzle. Possible pelvic pain congestion or interstitial cystitis.
• I have that appt in Dallas this week along with cardiologist appointment in Dallas.
• Thankfully I was able to get into the pain specialist here finally after having an especially difficult week/weekend. C went with me and although the pain relief plan didn't workout like we were expecting, we got some more answers and I got some pain medicine in the mean time as we go down a more focused path.
• Over the weekend I had to do the super fun 2 - 24 hour urine samples and blood test for mast cell activation syndrome. I am very ready to be done with that in the next few hours and turn in.