Long day, just now picking up girls from Memaw & Grandpaw's. A really good appointment with a diagnosis of POTS and plan for treatment along with a few others. Unfortunately no update on PCS yet, have a referral to an interventional radiologist. Confirmation though that he is the only one who will see or know what to look for on an MRI & MRV since he would be the one to fix. Adding a few other doctors/specialists to my team so additional referrals for more testing and appointments. I will say it felt really nice to have the cardiologist impressed with the amount of knowledge I had of research and that he actually appreciated it. What didn't feel nice was the tilt table test where I had to quit at 14 minutes because I almost passed out. I guess an increase of 62 bmp in my HR will do that and why my cane has certainly come in handy lately. Thank you for all the prayers!
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